I'm sorry for the negativity I've been projecting lately. When I become very tired and stressed (it seems like even little things stress me out these days) I become very cranky. I've been trying to learn to recognize how I feel in advance to curb my negative behavior, but it's hard. I'm frustrated by my lack of options in treatment, the negative effects of medication, and the negative effects of having Acromegaly. It's a difficult disease to live with.
I think rather than continue my dissatisfaction with my treatment, and with UCSF right now, I will see if I can return to Stanford for a new opinion on my care (thankfully I have a PPO now, more options). And maybe I will find an herbal supplement to help with my stress issues? I wonder how everyone else with Acromegaly deals with the angry outbursts? I feel as if I can't control my actions sometimes, like a child having a temper tantrum. At first the Sandostatin seemed to help with that. Maybe 40mg every 3 weeks is too much for me? I've started gaining weight again, I've had GI issues, my hair is extremely dry and seems to have stopped growing as much and is turning completely gray at 35. It's so tiring trying to determine the proper care for myself. I feel like I can't trust any doctors because they truly don't know what I'm going through, and they don't have the experience with my disease to help me. All they can tell me is what the numbers should be on paper. They might look right, but something's not right.
I think rather than continue my dissatisfaction with my treatment, and with UCSF right now, I will see if I can return to Stanford for a new opinion on my care (thankfully I have a PPO now, more options). And maybe I will find an herbal supplement to help with my stress issues? I wonder how everyone else with Acromegaly deals with the angry outbursts? I feel as if I can't control my actions sometimes, like a child having a temper tantrum. At first the Sandostatin seemed to help with that. Maybe 40mg every 3 weeks is too much for me? I've started gaining weight again, I've had GI issues, my hair is extremely dry and seems to have stopped growing as much and is turning completely gray at 35. It's so tiring trying to determine the proper care for myself. I feel like I can't trust any doctors because they truly don't know what I'm going through, and they don't have the experience with my disease to help me. All they can tell me is what the numbers should be on paper. They might look right, but something's not right.
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2 comments:
have you thought of going to Mayo Clinic? They are ranked #1 in endocrinology and you do not need a physician referral.
You will be there 3-5 days on an outpatient basis while they assess you.
Rochester MN
Thanks for the suggestion. Truthfully I hadn't even considered it because of the expense, I'm in California. Maybe I will when I'm really desperate :-)
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