Tuesday, April 3, 2007

UCSF Update

I'm excited to have some good news today. My doctor told me that we're going to skip the 3 weeks of daily injections and go straight to the monthly injections of Sandostatin LAR. I'm a little worried about the side effects, but as long as it works out it will be so much more convenient. I've also been taking cortef (oral hydrocortisone) and levoxyl (synthroid) prescribed by another doctor and he told me I can begin weaning off those as it doesn't appear I need them based on bloodwork. So the only med I'd need would be the injection, yay! I hate to take any drugs I don't need. I'm actually beginning to see I have more side effects than I realized thanks to the cortef most likely. Maybe I don't have fibromyalgia after all, just side effects of cortef.

I also now know my GH level based on blood tests is 7.4 ng/mL. This number may have been affected by my taking the steroid hydrocortisone. The doc says normal accepted level used to be 5 ng/mL, now it's 2 ng/mL. I'm going to do the oral glucose tolerance test for GH next week. And hopefully within 3 weeks when I return to UCSF and insurance approves I'll start on the Sando shot.

3 comments:

Anonymous said...

Welcome to Sandostatin! I have to be honest, I'm on 20mg/mth (LAR) and I don't really notice any significant side effects. I hope it goes well, post how you get on.

Jason

Anonymous said...

My husband is also on Sandostatin 20mg/mth(lar) and he did not have side effects, his IGF level came down alot, well for some reason it goes up and down from month to month he feels fine. And i pray that all goes well with you.

nicole

Anonymous said...

Dear jenny

My husband is on sandostatin 20mg/mth (LAR) and had no side effets. His IGF levels are good.
You will be fine keep the faith.


nicole