Hey everyone. I just wanted to say yes, I'm still alive :-) I received an email from a fellow Acro wondering why I was neglecting to post. I'm including some of my response here. I'm sorry I don't blog as often. Part of the reason I was so active online in years prior is because I was still figuring things out, and still coming to terms with the disease. There were also much fewer online resources for Acromegalics. Now we have so many that I wonder how rare the disease really is. So yes, usually if I don't blog it's because things are going well. It's still rough but mostly I do ok, and my treatment is pretty straightforward. Since changing to an endocrinologist closer to home, my stress level has gone down (I think I have whitecoat anxiety on top of everything else!), and I only visit him once a year. My labs are once a year, and MRI's once every 3 years since there's been no change in so long.
I also try not to dwell on the Acro because I'm one of those people who will worry it to death, and be online Googling everything for 12 hours straight, or till I fall off my computer chair passed out :-) I think I've already done enough worrying with 7 years since surgery alone! And truly part of my neglect is frustration with this disease, because there are so many unknowns. It's sad when I think I'm more knowledgeable than my doctors sometimes. I also don't want to post as often and feel like a big whiny baby :-)
That said, I always like to be there to help out if there's someone with Acro who needs to compare notes, just needs to talk, or to meet in person. I've met in person Ellen from Acromegaly Bloggers, Wayne Brown from Acromegaly Community, and was lucky to meet Tanya Angus before she passed. I think that meeting my fellow Acro's in person did help in my search for information, validation, and my healing process. There are a few people with Acro that I still speak with via email. Please feel free to contact me. I'll likely respond to email much quicker than I will to write a blog post.